Locked in a room, when you are 90 and if you have dementia and significant physical and cognitive impairment is horrible. It is cruel and harmful. It is what our older folk have to do, whilst we, the rest are out and about, living it up.
Out optic blind-spots continuously adapt to provide us with a seamless sense of reality, only becoming real when we reverse into a wall that we didn’t see.
Well, if nothing (but everything) has changed, what is the big deal about DNACPR and ACP; what is new?
Sometimes eight or nine relatives would pack into these airless spaces to spend the last hours and minutes with their mum or dad;
Ensure independence, autonomy and the right care and support for people living with dementia (and, yes, older people in general) and the NHS will be fine.
You see, The Plan says that more will be invested into community care, yet, the cumbersome nature of the NHS, again, the upside-down system of health and social care has resulted in lots or organisation and reorganisation but little transformational thought, little concept of how we can do things differently.
Maybe we should call it ‘hospital check-out’, to get away from the nonsense of fitness, when many of the people described are actually quite sick and are often even dying, it is just that their death need not require a bed on a hospital ward.
I will not go into more detail about this but suffice it to say, this is congruent with my values and probably my purpose.
An army of carers support our old, frail and vulnerable.
Many receive minimum wage.
Many also work to zero hours contracts.
No sick leave, no training, no holiday pay.
I see that despite the wonders that take place in big hospitals, much of what is needed by patients and people across society cannot be delivered inside the walls and congested car-parking spaces of these institutions.
…you see your destination and intuitively perceive that the way to arrive at that goal is not straightforward, indeed, you might learn that it is only a stepping-stone towards something else.
Now we are learning that language, behaviour, how we behave and relate to people living with dementia is probably more important than the medicine;
‘Three days,’ the patient replied, ‘No one told me, I didn’t know what was happening.’
He had a room, a bed, chair and view of Maxwell park.